I was recently accused by my sister(s) that I am “Faking” my illness. This is probably the worst thing you can say to someone with any chronic illness. He keeps telling me about others being much worse off than me and and just get on with it. So yeah, we understand it’s not a life-threatening disease, but you need to understand it is a life-limiting disease. Adrienne Dellwo. A lot of this is very cruel and hurtful. xx.

I have decided that family or not I will not subject myself to ignorance and abuse ever again. There are people who competition runners who experience fibromyalgia. It’s a sad reality that people with Fibromyalgia often have to deal with judgement and criticism from their friends, family and the public at large. You had no idea you did it.

Fibromyalgia Things NOT to say to someone with Fibromyalgia. I was very ill last year. This site uses Akismet to reduce spam.

People can be so silly at times. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. 11. The pain we experience is real. Uh yes! Even after that we’ve continued to try to just work through it, but it only makes it worse. It’s just not worth it. ( Log Out /  Someone you know and love has Fibromyalgia or suffers from some sort of chronic pain. While it’s often difficult to find the words to provide support and hope for those suffering from fibromyalgia, here is a list of things that you don’t want to say to someone with fibromyalgia. How we look on the outside doesn’t matter because it’s not a reflection of how we actually feel. Your theory that because we aren’t lying in bed writhing in pain means it doesn’t really hurt that bad, is wrong. I was 25 at the time, and his response was ‘well, at my age maybe, but not at 25 they don’t!’. The sad truth about pharmaceuticals is that to get approved they only have to provide a 30% improvement to about 30% of the people. I do not claim to be a doctor. Trust me when I say that we don’t want attention.

Fibromyalgia is real. The Ins and Outs of Dating Someone With Fibromyalgia and CFS, Cooking When You Have Fibromyalgia or Chronic Fatigue Syndrome, Good & Bad Gifts for Someone With Fibromyalgia or ME/CFS, Exercising Without the Crash for Fibromyalgia and Chronic Fatigue, You Don't Have to Go Through Fibromyalgia and ME/CFS Alone, "I Want a Tattoo, But I Have Fibromyalgia", understand your friend's/family member's illness. Counting My Spoons respects your privacy.

Chances are we’ve spent a good amount of time researching that treatment and know more than our doctor does. Learn how your comment data is processed. If God doesn’t give us more than we can bear why are there so many suicides by people who do believe in God? I simply share my experiences and what has worked for me. Below is a list of things that you’ve likely said at some point to someone you care about, and in doing so you unknowingly made them feel even worse. I call putting on make-up my war paint. And, at some point you’ve said something to them that hurt their feelings and made them feel worse. Learn about treatment and lifestyle changes to cope with fibromyalgia and chronic fatigue syndrome. Spoonie. I had to see them for a family matter and instead they turned it around and attacked me instead of dealing with the issue we were there for.

“It can’t be that bad”, or being made to believe it’s in your head… argggh!! I’ve heard a few of those and I think the exercise one might be the one I’ve found most insulting. Enter your email address to follow this blog and receive notifications of new posts by email. You just need to lower your stress level. I see them rarely because they are narcissistic, rude and toxic. Went to see surgeon for follow up visit, and recep said “You look well” and I told her, “Yes, the makeup can hile what the blood test cant” Regards Annette. Chronic pain is itself stressful. A lot of this is very cruel and hurtful. It’s unlikely that they told you. You look well!!! Fibromyalgia is real. It’s a sad reality that people with Fibromyalgia often have to deal with judgement and criticism from their friends, family and the public at large. I feel like I’m a failure as a mom and wife because I cant function. Someone you know and love has Fibromyalgia or suffers from some sort of chronic pain. Fibromyalgia is often treated much like “hysteria” 100 years ago; that it’s just women wanting attention.